Register for Camp Neuro Revolution

WHAT:

Camp Neuro Revolution (previously known as Camp Spike and Wave) is a camp for youth with Epilepsy (seizure disorders).

WHEN: 

 Camp will be held from Wednesday, July 18th to Saturday, July 21st.

WHERE:

Camp is located in Park City, Utah, at the National Ability Center.

APPLY NOW!

Please fill out the form below to the best of your ability to ensure a spot at Camp for your child - a time stamp* is included upon your submission and beds are limited!

Your submission will be outputted to a spreadsheet that is directly associated with this Google Form.

Please note that the EAU will not distribute or sell any of your information that you submit.

MAIL-IN OPTION & OTHER CONCERNS:

If you would prefer to mail in the basic application (similar to the questions below) have any questions or concerns please contact Holly E. Ferrin

• via text/voice: (801) 931-9629
• via email: holly@epilepsyut.org

*NOTE: This year's registration is on a first-come-first-serve basis so save your child's spot and apply now!  Additionally, please note that there will be other paperwork you will need to fill out prior to the first day of Camp, which includes release forms, medical forms, as well as information forms for the National Ability Center. 

Additional Note:
SPONSORS, VOLUNTEER STAFF, NURSES, AND INTERPRETERS ARE NEEDED!
Please email Holly for more information on how you can help Camp Neruo Revolution be a success.

• holly@epilepsyut.org

Camp Neuro Revolution 2012 - Preview: The Cargo Net

Get ready for a Camp for youth with Epilepsy that has been Revolutionized!

The Epilepsy Association of Utah (EAU) presents a preview of one of the high ropes course elements you can expect to participate on when you come to Camp Neuro Revolution (formerly known as Camp Spike and Wave).

Camp Neuro Revolution is a 4 day, 3 night summer camp for the youth of Utah ages 10-18 who have Epilepsy or seizure disorders. It is located in spacious and glorious Park City, Utah, at the National Ability Center. 

Register Today!

To get more details about Camp, such as cost, paperwork, as well as other concerns, please contact our Camp Director, Holly E. Ferrin

• Phone: (801) 931-9629
• Email: holly@epilepsyut.org

Click here to see videos, pictures, and blog posts about our previous year of camp.

Find the EAU on Twitter @EpilepsyUTAH

Find the EAU on Facebook @Epilepsy Utah, as well as @Epilepsy Association of UT

The Epilepsy Association of Utah's Website: www.epilepsyut.org

Crop Because You Care 2012: Preview

The Epilepsy Association of Utah (EAU) presents a preview of the 11th annual Crop Because You Care fundraiser.



Do you like to scrap-book? Do you, or does someone you know, have epilepsy? Do you like gettin' crafty for a cause? Well then, the 11th annual Crop Because You Care is the place to be for you. 


"Crop the day away with your friends and family, get great ideas from the other scrappers, and learn from some of the best. A great excuse to get out and be creative! Entry price is $25.00 for the all day pass... Enjoy up to 12 hours of demonstrations, vendor booths, speakers, and creative fun. Bring your supplies and pictures along with any ideas you'd like to share"

Here are some comments that were made on the Crop Because You Care Facebook page in reference to CBYC 2010:

Nadine Jones Anderson said, "My sister and I have come for the last 8 years (I wish we new about it one year sooner!) and my daughter has benefited by attending camp twice! Thanks so much!"

Alina Dannette Burk said, "I get so excited every time CYBC comes around! I have attended every year since it began 9 years ago. I simply cannot imagine missing this event!"

Cindee Stoker Nielsen said, "My sister, mom and I have been coming to CBYC every year since it started. This year Mom has to drive four hours to get here, but we'll still be there - thanks for providing us the opportunity to get together and enjoy our favorite hobby."

The above comments are just a few of the great things heard about CBYC, if you can't believe it, come and see for yourself, this year on April 28th, 2012 at the South Towne Expo Center!

If scrap-booking isn't your thing, you can still get involved with this great cause. "The crop... has raised thousands of dollars to help the Association provide services to people dealing with the many challenges of epilepsy." If you would like to donate items to be raffled, auctioned, or if you would like to be a sponsor of this year's Crop Because You Care you can contact the EAU's office, at (801) 566-5949 or Bethany at bethany@epilepsyut.org.

For more information regarding sponsorship and donations (as well as a lot of other information) you can visit the Crop facebook page and/or the web-page within the epilepsyut.org website.


http://www.epilepsyut.org/events.html



Find the EAU on Twitter @EpilepsyUTAH

Find the EAU on Facebook @Epilepsy Utah, as well as @Epilepsy Association of UT

The Epilepsy Association of Utah's Website: www.epilepsyut.org

Purple Day Utah 2012: Reviewed

Family, Friends, Epilepsy Warriors

 Purple Day Utah was, in a word, amazing.  We must first thank everyone who helped set things up, participate and attend, as well take down.  The Epilepsy Association of Utah would not be the way it is today without YOU! 

The Salt Lake Tribune features Brittany M. and others sending off balloons for Epilepsy Awareness in Utah

Did you know that a photo of the Launch made it to the front page of the Utah section of the Tribune?  So exciting!  Thanks goes out to our new board members, Angela and Greg Green for sharing it with them.  We are also grateful that the weather was fairly cooperative.  It might have been a bit disastrous to launch those balloons in blistery, windy, wet weather!

Lift Off!

It was a special moment when we witnessed those balloons raise up into the sky.  It was seemingly symbolic - the way that we let go of them and watched them go higher and higher into the atmosphere - almost as if we let go of any problems that may have been weighing us down at that time.  It was a time to reflect and remember, a time to renew how we will continue to wear purple proudly.  By so doing, we can promote awareness, and education of what Epilepsy is and how to cope with it.

Caroline's Spine Performs!

Soon afterward, the event of the evening began to unfold.  Jeremy Anderson started off the night with his comedic talents, which then wittingly led to Caroline's Spine performance.  They are an awesome group to listen to, as well as observe.  They put passion behind what they play and the audience could feel it.  During the second half of their performance, lead singer, Jimmy Newquist invited the kids up on stage.  They loved it.  We saw them jamming out to Spine's music, following the beat of the drums and fast guitar strums.  While hearing their top song, "Sullivan," live gave us all chills, another moment to remember was when the band had everyone sing "Over the Rainbow."  It turns out that Newquist and Caroline's Spine will be returning soon to Utah.

Jimmy Newquist plays "Over the Rainbow" while the kids and audience sings along.

We are so very excited at the prospect of seeing them, hearing their music, and feeling their energy.  Thanks so much for coming to help with purple day, Caroline's Spine!        

Purple Day Utah: Faces of Utah Epilepsy

As International Epilepsy Awareness day rapidly approaches, the Epilepsy Association of Utah has compiled a video representing the many individuals in Utah living with Epilepsy. These faces are young, and not so young, brothers, sisters, husbands, and wives, they are the people we pass on the street everyday. They are as varied as the sands on a beach, and as lovely as the spring flowers now peeking from the thawing ground throughout Utah. Epilepsy awareness grows from a small seed, help us cultivate it and spread the word: You are not alone!



Thanks to our President, Kris Hansen for her hard work on this video.

Purple Day Balloon Launch 2012

FOR IMMEDIATE RELEASE

PURPLE DAY BALLOON LAUNCH SCHEDULED

SALT LAKE CITY, Utah, March 13, 2012 – In its efforts to help increase global and local Epilepsy awareness, the Epilepsy Association of Utah (EAU) will celebrate National Purple Day, held annually on March 26th, by holding a Purple Balloon Launch in Murray City. Each of the hundreds of balloon will be filled & tied with thoughts, hopes and memories of everyone, including the 50 million affected worldwide and as many as 150,000 from Utah; and then, released as a symbol of freedom and independence while each purple balloon finds its way into the world.

Date:     Monday March 26th
Time:     6:00pm
Place:    Murray City Hall Building
    5025 South State Street
    Murray, UT

Those interested in attending should meet at Murray City Hall at 6:00pm to prepare for the balloon launch. Admission is free and all ages are encouraged to participate. More information regarding this and other scheduled Purple Day events can be found on the Epilepsy Association of Utah’s website: www.epilepsyut.org

About Purple Day
National Purple Day was created by the idea of a 9-year-old girl, Cassidy Megan, motivated by her own struggles with Epilepsy. Cassidy's goal was and continues to be encouraging people to talk about Epilepsy while dismissing the myths and assuring those with seizures - they are not alone. Now every year on March 26th, people all around the world are invited to wear purple and involve themselves in events in promotional events supporting Epilepsy awareness.

About the Epilepsy Association of Utah
The Epilepsy Association of Utah provides awareness, education, support services and advocacy for and in behalf of all those dealing with the many challenges of Epilepsy/seizure disorders. More information can be found on their website @ www.epilepsyut.org

A Purple Jolt for Utah's Purple Day!

The Epilepsy Association of Utah proudly presents "Purple Jolt 2012 Benefit Rock Concert."  The performance follows the Purple Day Balloon Launch at 6:00 pm, held at Murray City Building.  The group who will be performing is Caroline's Spine, with special guest Jeremy Anderson.


About Caroline's Spine:

• Spine is an alternative American Rock band who has toured the United States and Europe with popular performing artists such as Aerosmith, Nickleback, as well as Kiss.  
• Spine is a RIAA-certified Gold and has achieve four "Top 40" rock radio hits.  
• Spine's music has been used by well-known TV networks such as ESPN, MTV, and Disney.  
• Spine is, as noted by Yamaha Music, "...one of the top 5 unsigned bands in America."

The Top Five Caroline's Spine Songs (via iTunes):

1. Sullivan
2. Attention Please
3. You and Me 
4. Nothing to Prove
5. The Light Inside

Sullivan and You and Me both come from Spine's 1997 album entitled "Monsoon."  Sullivan is reportedly the band's most popular song, due to it's accessible melody and compelling subject matter related to WWII.  You and Me starts out with a slower softer beat than Sullivan, but then turns to quicker tempo and heavier rock, it's a great song to jam out to and it seems to resonate with the frustrations rough relationships can sometimes bring.

Two years later, Spine released "Attention Please," where the tracks Attention Please and Nothing to Prove are heard.  Both tracks received high ratings on the Mainstream Rock Tracks chart at #30 and #23, respectively.  Nothing to Prove is probably a personal favorite of mine and all that I can say about it is take a listen to it below.  Attention Please, on the other hand, has a deep grungy sound whom's chorus seems to question life's train and where, as passengers, we are going.  That idea seems to ring true for a lot of people who deal with various problems, including seizures and Epilepsy.  Sometimes we wonder why it is that we have certain issues to deal with and it is, indeed, a fair question.  Until we find out why and where we are going, we can do our best to hold on for the ride.     

The last, but definitely not the least, of the top five tracks is The Light Inside from "Work It Out." It wouldn't surface until nearly a decade after Spine's aforementioned album, "Attention Please."  Nevertheless, the track definitely earned it's place among the top tracks of Spine's music.  The music is heavy with awesome beats with deep enlightening lyrics that question, and at the same time seem to encourage, the listener's ability to go on and continue to do their best despite difficulties they might experience.

Can't wait to see the band in action?  Well, the countdown is on and the concert is just days away, but until then, feel free to check out this video, from YouTube, of the group singing a song I particularly favor, Nothing to Prove.

  

Critical Info!

What: Purple Jolt 2012 Benefit Rock Concert

Where: Murray Historic Theatre 

 4961 S. State St., Murray, UT. 84107

When: Monday, March 26, 2012

Time: 7:00 pm

Tickets:

Prepaid Individual: $10

At-The-Door Individual: $12

VIP Table (includes backstage pass to meet the band, food, and private seating) $100
Buy Your Tickets Now!  

Contact: info@epilepsyut.org

Hope to see you soon for Utah Purple Day, and the Purple Jolt Rock Concert!  

Sources and Links:

Jimmy Newquist

carolinesspineofficial.com

Jeremy Anderson 

iTunes

Wikipedia 

*Caroline's Spine

*Monsoon

*Sullivan

*Attention Please

*Work It Out

Twitter 

Facebook Album Page

Facebook Musician Page

YouTube