Press Release - EAU celebrates volunteers

 FOR IMMEDIATE RELEASE

EAU celebrates volunteers!

SALT LAKE CITY, Sunday, September 20, 2015- The Epilepsy Association of Utah sets date for awards.

“The best way to find yourself is to lose yourself in the service of others.”

On Saturday, September 26^th, 2015, Adobe Systems, Inc. will open its doors to the volunteers, members and staff of the Epilepsy Association of Utah to celebrate the 3^rd Annual Community Service Awards. This Annual event celebrates the many individuals, companies and groups that volunteer their time, talents and people to furthering the cause of epilepsy awareness in Utah.

“As one of the oldest Nonprofits in Utah, we have had the opportunity to meet some of the most amazing people and companies. Utah truly is one of the most caring states, the most active in giving of themselves, and some of the most passionate people in the country,” Said Annette Maughan, CEO and President. “We would be remiss to not take this time to say Thank You to those people who have sacrificed to help people with epilepsy live more rewarding lives. These awards are a small token of the epilepsy community’s gratitude.”

Event Details:

Saturday, September 26th, 2015

Adobe Inc.

3900 Adobe Way

Lehi, Utah 84043

6:00-11:00pm, Cocktail Hour: 6:00-7:00pm, Dinner & Awards: 7:00-9:00pm, Dancing: 9:00-11:00pm

Public nominations were accepted the first two weeks in August at which time nominees were notified and voting began. All awards are based on the two top-vote getters in each category by public vote.

The awards are given out in seven categories and three committee-decided special recognition criteria:

Youth Advocate, Advocate, Commercial Partner, Medical Professional, Youth Volunteer, Volunteer Group, Volunteer

and

The Charlee Award, Keystone Award, Purple Star

Tickets can be purchased at: http://tinyurl.com/EpilepsyUtahCSA

Let’s Celebrate together!

ABOUT THE EPILEPSY ASSOCIATION OF UTAH

Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

Press Contact:        Candi Huff

Email:                     candi@epilepsyut.org

Website:                  www.epilepsyut.org

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Press Release: Lagoon Day with Epilepsy Utah!

FOR IMMEDIATE RELEASE

Epilepsy Association of Utah Announces

3^rd Annual Lagoon Day!  

SALT LAKE CITY – Thursday, May 7^th, 2015 The Epilepsy Association of Utah (EAU) announces the 3^rd  annual Lagoon Day.

On Tuesday, June 9^th, 2015 Lagoon Amusement Park in Farmington recognizes the people of Utah affected by epilepsy and they are offering us a special “Lagoon Day”.  From 11am to 10pm, anyone that comes to the EAU booth and says: “I am with the Epilepsy Association of Utah” will get their all day Passport for $29.11! That’s a savings of over $20.00 per Passport!  But wait, there’s more: One person who accompanies someone with epilepsy and is designated their ‘chaperone’ will receive their Passport for only $12!

The EAU will also have the Big Horn Terrace for the whole day and there will be extra personnel and EMT’s on hand to assist with any extra medical needs that may arise.  Feel free to join us anytime during the day to relax, chat, or snack. 

So get the platforms out because you must be at least this tall to ride! Hope to see you there!

What:    Lagoon Day                               
Date:    Tuesday June 9^th, 2015                
Time:   11:00am- 10:00pm                     
Place:   Lagoon Amusement Park            
                  375 Lagoon Drive                                 

      Farmington, Utah 84025                        

                 (80) 451-8100


ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4^th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

Press Contact:        Candi Huff
Email:                     candi@epilepsyut.org
Phone:                    (801) 566-5949
Website:                  www.epilepsyut.org

3eQ - Nancy and Wayne

Thank you Nancy and Wayne, for answering the 3 epilepsy questions! #3eQ

3eQ - Jackson Carter

Thanks Jackson!

3eQ - Beverly Williamsen

Thank you Beverly!

EAU & H4CE Announce Federal Bill and Epilepsy Celebration

For Immediate Release

Epilepsy Association of Utah & Hope 4 Children With Epilepsy

Announce Introduction of Federal “Charlotte’s Web Medical Access Act of 2015” &

Celebration of “Paint the State Purple” for Epilepsy Awareness

SALT LAKE CITY, Utah – Wednesday, March 25, 2015

The Epilepsy Association of Utah and Hope 4 Children With Epilepsy have joined thousands of families across the nation advocating for federal access to therapeutic hemp oil. A non-profit organization, Coalition for Access Now, has been formed to streamline the bi-partisan legislative efforts, and representatives of the group joined lawmakers at a press event in Washington DC today at 2:00pm (EST) to introduce the “Charlotte’s Web Medical Access Act of 2015”.

The bill proposes to amend the Controlled Substances Act to exclude therapeutic hemp and cannabidiol (CBD) from the definition of marijuana, granting those suffering access to treatment according to the laws of their own states. Therapeutic hemp is defined as cannabis with THC content below 0.3%.

Although HB105 "Charlee's Law" was passed in the Utah legislature last year, the law remains in opposition to ambiguous federal legislation, meaning families are breaking federal law when treating their children with high-CBD hemp oil. They are open to prosecution by the federal government. Producers are also at risk since the oil cannot legally be shipped or transported into Utah without violating federal law. Removing non-psychotropic high-CBD hemp oil from the same category as marijuana would remove barriers and allow for increase in supply, reduction in cost, and improvement in quality and testing. It would give every family in the nation legal access to the treatment. In addition, the current restrictions on research would be lifted so researchers can be free to study the impact of the treatment on various conditions.

We plead with federal legislators to support and/or co-sponsor “Charlotte’s Web Medical Access Act of 2015”. Likewise, we urge our state legislators, as well as all citizens of Utah and the United States, to let their voices be heard in support of those suffering with intractable epilepsy in our country.

Information regarding “Charlotte’s Web Medical Access Act of 2015” can be found at www.coalitionforaccessnow.org. Utah families participating in the federal effort invite you to join them at Thursday’s “Paint the State Purple” event on the steps of our state capitol building in celebration of International Epilepsy Awareness Day!

“Paint the State Purple” will be happening at the capitol on Thursday evening, 6:30-8:30. The event will include live music, bubble party, coloring for kids, information tables, and 3eQ recording sessions. 3eQ is the Epilepsy Association of Utah’s new awareness campaign inviting individuals to record themselves answering three key questions about their experience with epilepsy and then submit their videos to the EAU for posting online. Videos can be viewed at www.epilepsyutah.blogspot.com. Board members of the Association will be at “Paint the State Purple” prepared to create these videos upon request.

In addition to the day’s events, the Epilepsy Association of Utah (EAU) is encouraging Utahns throughout the state to rally support for those with seizure disorders by wearing or displaying purple and posting their pictures on social media. Jennifer May, co-founder of Hope 4 Children With Epilepsy, is excited about the awareness and advocacy being brought to those suffering with epilepsy. “Across the country, families and individuals impacted by epilepsy are pulling together to strengthen each other, educate their communities, and make changes in law that will allow groundbreaking new therapies to move forward and improve lives.”

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ABOUT THE EPILEPSY ASSOCIATION OF UTAH

Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. One in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the fourth most common neurological disorder in the US after migraine, stroke, and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

ABOUT HOPE 4 CHILDREN WITH EPILEPSY

We are parents of children with severe forms of epilepsy. Most have multiple types of seizures every day, varying in intensity and length from seconds to hours. The seizures take a toll on the children’s overall health, ability to function, and quality of life. These children also have 10-times increased risk for sudden death. We desperately need new treatment options that hold hope for controlling the seizures, stopping the deterioration, and improving quality of life for our kids. We have been lobbying to make high-CBD/low-THC cannabis extract available in Utah to those who suffer with intractable epilepsy. The extract is NOT smoked and it CANNOT get anyone ‘high’, but it CAN save the lives of our children. Visit www.hope4childrenwithepilepsy.com for additional information.

Press Contact: Candi Huff, Epilepsy Association of Utah

Phone:                  801-557-0326

Email:                   candi@epilepsyut.org

Website:               www.epilepsyut.org

Press Contact:  Jennifer Hardy-May, Hope 4 Children With Epilepsy

Phone:                   801-400-0046

Email:                   lovingthemayhem@gmail.com

Website:               www.hope4childrenwithepilepsy.com

3eQ - Kelly Collinson

Thank you Kelly for answering 3 epilepsy questions!