SUDEP- What it is and what you can do.

Thanks to our friends at SUDEP Aware.

Medical News: Risk of Epilepsy Measured, May Be Still Higher - in Neurology, Seizures from MedPage Today

This research was originally concluded and published late last year. In researching the topic, we could not find ONE major news outlet that had reported on this study. The study concluded that 1 in 26 may still be an under estimate due to the fact that the United States currently has no reporting system for incidences involving Seizures and Epilepsy. As it stands, using this data, the incidence of Epilepsy in the United States is raised from 3 Million to 12 Million, with Men having a slightly higher chance of developing Epilepsy: 1 in 21.

Medical News: Risk of Epilepsy Measured, May Be Still Higher - in Neurology, Seizures from MedPage Today

Come One Come All... To Our Ribbon Cutting!

Copy of Official Inviation

FOR IMMEDIATE RELEASE:

Epilepsy Association of Utah Announces Office Relocation

West Jordan Mayor to attend Ribbon Cutting Ceremony

West Jordan, UT - June 13, 2011 - The Epilepsy Association of Utah today announced it has relocated it's primary offices to a newer space within West Jordan City.  “The new office space is more open and inviting”, said Kris Hansen, President of The Association. “We needed a better space to host member events and receive guest, this new space provides that opportunity”.  To commemorate the move, the West Jordan Chamber of Commerce is hosting a Ribbon Cutting event in their honor.

When: Friday, June 16th

Open House: 11-2

Ribbon Cutting: 11:30

Where: 8539 S. Redwood Rd. #B

West Jordan, UT 84088

Phone: (801) 566-5949

About the EAU

The Epilepsy Association of Utah was founded in 1973, and is the only 501(c)(3) epilepsy charity in Utah. New statistics conclude that 1 in every 26 people are affected with epilepsy at some time in their lives. Epilepsy is a disorder with a variety of causes and may also be considered a seizure disorder. Epilepsy affects more people than multiple sclerosis, cerebral palsy, muscular dystrophy and Parkinson's disease combined. The EAU sponsors a teen camp, awareness, education, support groups, advocacy, college scholarships, art exhibits, educational conferences and much more. The EAU is dedicated to enhancing the quality of life for all individuals living with epilepsy and seizure disorders.

About the West Jordan Chamber of Commerce

The West Jordan Chamber of Commerce is an association of business in West Jordan united together to advocate commercial and civic interests. The Chamber is a business avenue for networking and promotions; an educational resource for business leaders; and a catalyst in strengthening and creating a strong business environment. The Chamber represents all businesses and is committed to providing tools and removing barriers to ensure an environment for your business to succeed and grow. Our mission statement is “To foster a positive relationship between business, city and community, to build a profitable business atmosphere.” 

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We really hope to see you there!!!

 

Destiny Maker Annual Bike Ride

Glenn Fenster, Destiny Maker, is currently involved in his annual cycling tour across North America raising awareness about Epilepsy. Glenn is one seriously dedicated father and Destiny Maker..

This may be the first time you have heard about him so, please take a moment to see what he has been up to and all the great work he has been doing. Information about his journey is available in the following places.

Glenn's Blog : http://glennsjourney.xanga.com/
Glenn's Twitter: search "@destinymaker4u"
Glenn's Website: http://www.destinymakerevents.com/

If you saw on his blog, Glenn posted:

"Good morning, of what I hope will be one final full day in Colorado. Really looking forward to getting to Utah where I know the Epilepsy [Association] of Utah and others will be helping me. Of all the affiliates, they are the ONLY ONE to really keep in touch, see what I might need, offer assistance such as cooking meals, and meeting support groups."

If you have anything to contribute, such as assistance with food, bike repairs, or just some emotional encouragement please let us know (via email, text, or FB message) if you would like to be there.

We know it's short notice (this years weather has slowed Glenn down) but according to his schedule he should be in SLC on Friday or Saturday (more likely Saturday). We need to make sure that this amazing guy is supported when he comes into Utah. We will update the blog and other social media outlets when we know for sure where he will be staying and where we can meet him.

He deserves to be cheered on for the work he is doing and it would be a great opportunity to hear what he has to say about raising Epilepsy awareness. Again, If you have anything to contribute, such as assistance with food, bike repairs, or just some good encouragement please let us know (via email, text, or FB message) if you would like to be there. Thank you.

Email Holly: holly@epilepsyut.org
Or send a facebook message!