Tuesday, November 12, 2013

Seize: The Story - Addy Hyer

At the tender age of three, Addy had her first seizure.  We thought she was choking as she lay on the floor making gurgling noises.  After the EMT’s arrived and we explained what happened they mentioned it might have been a seizure and we were transferred to the ER.  The next few months would be a nightmare.  Addy manifested 4 different types of seizures which included myoclonic, astatic, absence and tonic clonic.   Ironically we had just replaced the carpeting in our home with hardwood floors.  Her injuries were numerous as she repeatedly fell on those floors and seized.  It’s hard to see your child covered in bruises, lacerations and with permanent teeth knocked loose.  It became necessary to strap her into her chair during meals and accompany her to the toilet or when using the stairs.  There is no known cause for her disorder and we were told she may outgrow it, however she continues to decline.  Her doctor has diagnosed her with a combination of two different syndromes which are Doose and Lennox Gastaut.  They are both difficult to control and we are constantly changing medications and treatments to try and stop her seizures.  Currently Addy is on three different medications.  Her daytime seizures are controlled for now but we have never had control of her nocturnal seizures.  The side effects of these medications have caused developmental delays and learning disabilities as well as behavioral problems.  A secondary diagnosis of Sensory Processing Disorder has also recently popped up.  We have tried all kinds of alternative treatment including chiropractic, homeopathic, acupressure, hypnotherapy, occupational therapy and brain-linking.  Our next course of action will probably be the Ketogenic diet. 

Through it all Addy constantly has a smile on her face which is a reminder to me of how valiant her spirit is.  She is now seven years old and in the second grade.  She attends a tumbling and clogging class every week and has a special connection with animals.  We are in the process of applying for a companion/seizure dog for her.  The hardest thing for me as her mother is to continually watch my daughter slip away.  I will never give up hope and I will try every thing in my power to have her be a normal kid again and come back to me. 

Tuesday, November 5, 2013

Chili's Give Back Night for Epilepsy Awareness

This Wednesday, November 6th, 2013, all Utah locations of Chili's Grill & Bar are supporting the Epilepsy Association of Utah (EAU) through a "Give Back Night."  So, on Wednesday, let your local Chili's do the cooking and support the EAU at the same time!

As if their Spinich & Artichoke appetizer wasn't enough incentive to head in to Chili's and enjoy a meal, Chili's is showing their support by donating to the EAU!  With each flyer (see below) presented on Wednesday, 11/06/2013, Chili's will donate 15% of the event day sales back to the EAU.

When: Wednesday, 11/06/13
Time: 11:00 am - 11:00 pm (or during regular operating hours)
Where: At ALL Utah Chili's locations.

Join the official Facebook event and, when you are at dinner, snap some pics and tag Epilepsy Utah in your photo so we can add your experience to our Facebook album.  Your photo might even be featured in the next Wavelength newsletter!

We look forward to seeing you at Chili's!!!


Please print a flyer and take it in to your nearest Chili's location in order to have 15% of the check donated in support of the Epilepsy Association of Utah.

Share this flyer on Facebook!  


If you have any questions or concerns, please email holly@epilepsyut.org or call/text (801) 566-5949.


While the flyer states that the event is only happening in Layton, UT.,  the EAU has confirmation from the event planner that this flyer does apply to ALL Chili's Grill & Bar locations, and each location is aware that the Give Back Night is happening only on Wednesday, November 6th, 2013.  

The "Give Back" event flyer is required with each check to receive credit for the sale.  Sale cannot be included in donation amount without flyer.  

Offer is only valid on the date stated above.  Donations will not be given on sales made prior to or past this date.