Wednesday, November 4, 2015

November is Epilepsy Awareness Month!

In honor of Epilepsy Awareness Month, the EAU has several events and a few fabulously fun things we are inviting you to participate in! While you are raising awareness, be sure to tag us in your social media photos! We'd love to include you in our year end video.

November 1st - Awareness Month Begins!


November 4th - Epilepsy Awareness Day at Disneyland Expo                        Paradise Pier Hotel

                        1717 Disneyland Dr
                        Anaheim, CA 92802

November 5th - Epilepsy Awareness Day at Disneyland!

                        1313 Disneyland Dr

                         Anaheim, CA 92802

November 7th - Purple Dash 5K -
                        East Riverfront Park Pavilion
                        10991 S Riverfront Parkway

                        South Jordan, UT 84095

Find us on Facebook tag #epilepsyutah
Follow us on Twitter
View us on Instagram


Let's see your purple!

Tuesday, October 6, 2015

Community Service Award Winners

“The best way to find yourself is to lose yourself in the service of others.”

Anyone that may have been feeling lost, was certainly found at the 3rd Annual Community Service Awards.  Every table was full and every heart was open. One simply can not be in a room of humanitarians and not come away feeling better about the world they live and their contribution to it. Hosted by Ben Winslow, sponsored by Lundbeck Pharmaceuticals and Sunovion Pharmaceuticals, catered by Apple Spice Junction with awards printed by McGee's Trophies and Gifts, the evening was inspiring, heart-wrenching and a little goofy. Do you have any #Selfies of the evening? We do!

While we await the professional pictures, please check out our fabulous award recipients.

Thank you to everyone for a wonderful evening.


Youth Advocate
Jordon Taylor
President’s Award: Chloee Bird

Advocate
Annette Maughan
President’s Award: Melanie Johnson

Keystone Award
Utah Kids Foundation

Commercial Partner
Utah’s Hogle Zoo
President’s Award: Purple Dash 5K

Memorials
Ashley Ann Call
Camille Call-Garcia

Medical Professional
Dr. Denise Morita, MD
President’s Award: Kim Orton

The Charlee Award
Annette Maughan

Youth Volunteer
Taylor Maughan
President’s Award: Amelia Connors

Dedicated Service Award
Glenn Maughan

Board Member of the Year
Nicole Young

Purple Star
Bethany Blackham
Christine Ferrin
Gail Ferrin
Candi and Jason Huff
Devin Young
Raymond Christy

Volunteer Group
Team Kid Courage
President’s Award: VIP Special Needs Sport’s League

Volunteer
David and Judy Hultgren
President’s Award: Pamela Bird

Lifetime Achievement Award
Dr. Tawnya Constantino


Sunday, September 20, 2015

Press Release - EAU celebrates volunteers

 FOR IMMEDIATE RELEASE
EAU celebrates volunteers!

SALT LAKE CITY, Sunday, September 20, 2015- The Epilepsy Association of Utah sets date for awards.

“The best way to find yourself is to lose yourself in the service of others.”

On Saturday, September 26th, 2015, Adobe Systems, Inc. will open its doors to the volunteers, members and staff of the Epilepsy Association of Utah to celebrate the 3rd Annual Community Service Awards. This Annual event celebrates the many individuals, companies and groups that volunteer their time, talents and people to furthering the cause of epilepsy awareness in Utah.

“As one of the oldest Nonprofits in Utah, we have had the opportunity to meet some of the most amazing people and companies. Utah truly is one of the most caring states, the most active in giving of themselves, and some of the most passionate people in the country,” Said Annette Maughan, CEO and President. “We would be remiss to not take this time to say Thank You to those people who have sacrificed to help people with epilepsy live more rewarding lives. These awards are a small token of the epilepsy community’s gratitude.”

Event Details:
Saturday, September 26th, 2015
Adobe Inc.
3900 Adobe Way
Lehi, Utah 84043
6:00-11:00pm, Cocktail Hour: 6:00-7:00pm, Dinner & Awards: 7:00-9:00pm, Dancing: 9:00-11:00pm

Public nominations were accepted the first two weeks in August at which time nominees were notified and voting began. All awards are based on the two top-vote getters in each category by public vote.

The awards are given out in seven categories and three committee-decided special recognition criteria:

Youth Advocate, Advocate, Commercial Partner, Medical Professional, Youth Volunteer, Volunteer Group, Volunteer

and

The Charlee Award, Keystone Award, Purple Star

Tickets can be purchased at: http://tinyurl.com/EpilepsyUtahCSA

Let’s Celebrate together!

ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.
Press Contact:        Candi Huff
Email:                     candi@epilepsyut.org
Website:                  www.epilepsyut.org


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Saturday, May 23, 2015

Press Release: Lagoon Day with Epilepsy Utah!

FOR IMMEDIATE RELEASE

Epilepsy Association of Utah Announces
3rd Annual Lagoon Day!  

SALT LAKE CITY – Thursday, May 7th, 2015 The Epilepsy Association of Utah (EAU) announces the 3rd  annual Lagoon Day.

On Tuesday, June 9th, 2015 Lagoon Amusement Park in Farmington recognizes the people of Utah affected by epilepsy and they are offering us a special “Lagoon Day”.  From 11am to 10pm, anyone that comes to the EAU booth and says: “I am with the Epilepsy Association of Utah” will get their all day Passport for $29.11! That’s a savings of over $20.00 per Passport!  But wait, there’s more: One person who accompanies someone with epilepsy and is designated their ‘chaperone’ will receive their Passport for only $12!

The EAU will also have the Big Horn Terrace for the whole day and there will be extra personnel and EMT’s on hand to assist with any extra medical needs that may arise.  Feel free to join us anytime during the day to relax, chat, or snack. 

So get the platforms out because you must be at least this tall to ride! Hope to see you there!

What:    Lagoon Day                               
Date:    Tuesday June 9th, 2015                
Time:   11:00am- 10:00pm                     
Place:   Lagoon Amusement Park            
                  375 Lagoon Drive                                 
      Farmington, Utah 84025                        
                 (80) 451-8100


ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

Press Contact:        Candi Huff
Email:                     candi@epilepsyut.org
Phone:                    (801) 566-5949
Website:                  www.epilepsyut.org

Friday, April 10, 2015

3eQ - Nancy and Wayne

Thank you Nancy and Wayne, for answering the 3 epilepsy questions! #3eQ


Wednesday, March 25, 2015

EAU & H4CE Announce Federal Bill and Epilepsy Celebration
















For Immediate Release

Epilepsy Association of Utah & Hope 4 Children With Epilepsy
Announce Introduction of Federal “Charlotte’s Web Medical Access Act of 2015” &
Celebration of “Paint the State Purple” for Epilepsy Awareness

SALT LAKE CITY, Utah – Wednesday, March 25, 2015

The Epilepsy Association of Utah and Hope 4 Children With Epilepsy have joined thousands of families across the nation advocating for federal access to therapeutic hemp oil. A non-profit organization, Coalition for Access Now, has been formed to streamline the bi-partisan legislative efforts, and representatives of the group joined lawmakers at a press event in Washington DC today at 2:00pm (EST) to introduce the “Charlotte’s Web Medical Access Act of 2015”.

The bill proposes to amend the Controlled Substances Act to exclude therapeutic hemp and cannabidiol (CBD) from the definition of marijuana, granting those suffering access to treatment according to the laws of their own states. Therapeutic hemp is defined as cannabis with THC content below 0.3%.

Although HB105 "Charlee's Law" was passed in the Utah legislature last year, the law remains in opposition to ambiguous federal legislation, meaning families are breaking federal law when treating their children with high-CBD hemp oil. They are open to prosecution by the federal government. Producers are also at risk since the oil cannot legally be shipped or transported into Utah without violating federal law. Removing non-psychotropic high-CBD hemp oil from the same category as marijuana would remove barriers and allow for increase in supply, reduction in cost, and improvement in quality and testing. It would give every family in the nation legal access to the treatment. In addition, the current restrictions on research would be lifted so researchers can be free to study the impact of the treatment on various conditions.

We plead with federal legislators to support and/or co-sponsor “Charlotte’s Web Medical Access Act of 2015”. Likewise, we urge our state legislators, as well as all citizens of Utah and the United States, to let their voices be heard in support of those suffering with intractable epilepsy in our country.

Information regarding “Charlotte’s Web Medical Access Act of 2015” can be found at www.coalitionforaccessnow.org. Utah families participating in the federal effort invite you to join them at Thursday’s “Paint the State Purple” event on the steps of our state capitol building in celebration of International Epilepsy Awareness Day!

“Paint the State Purple” will be happening at the capitol on Thursday evening, 6:30-8:30. The event will include live music, bubble party, coloring for kids, information tables, and 3eQ recording sessions. 3eQ is the Epilepsy Association of Utah’s new awareness campaign inviting individuals to record themselves answering three key questions about their experience with epilepsy and then submit their videos to the EAU for posting online. Videos can be viewed at www.epilepsyutah.blogspot.com. Board members of the Association will be at “Paint the State Purple” prepared to create these videos upon request.


In addition to the day’s events, the Epilepsy Association of Utah (EAU) is encouraging Utahns throughout the state to rally support for those with seizure disorders by wearing or displaying purple and posting their pictures on social media. Jennifer May, co-founder of Hope 4 Children With Epilepsy, is excited about the awareness and advocacy being brought to those suffering with epilepsy. “Across the country, families and individuals impacted by epilepsy are pulling together to strengthen each other, educate their communities, and make changes in law that will allow groundbreaking new therapies to move forward and improve lives.”

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ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. One in 26 people will develop Epilepsy at some time in their lives leading to over 100,000 people in Utah alone. Epilepsy is the fourth most common neurological disorder in the US after migraine, stroke, and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

ABOUT HOPE 4 CHILDREN WITH EPILEPSY
We are parents of children with severe forms of epilepsy. Most have multiple types of seizures every day, varying in intensity and length from seconds to hours. The seizures take a toll on the children’s overall health, ability to function, and quality of life. These children also have 10-times increased risk for sudden death. We desperately need new treatment options that hold hope for controlling the seizures, stopping the deterioration, and improving quality of life for our kids. We have been lobbying to make high-CBD/low-THC cannabis extract available in Utah to those who suffer with intractable epilepsy. The extract is NOT smoked and it CANNOT get anyone ‘high’, but it CAN save the lives of our children. Visit www.hope4childrenwithepilepsy.com for additional information.



Press Contact: Candi Huff, Epilepsy Association of Utah
Phone:                  801-557-0326
Email:                   candi@epilepsyut.org
Website:               www.epilepsyut.org

Press Contact:  Jennifer Hardy-May, Hope 4 Children With Epilepsy
Phone:                   801-400-0046
Email:                   lovingthemayhem@gmail.com
Website:               www.hope4childrenwithepilepsy.com