Salt Lake Valley Support Group

Please note, the time change and location are temporary.

The topic for the month of December is doctor visits, care, and questions to ask. 

When: Sat, Dec. 8th, 2012
Where: EAU Office
8539 S. Redwood Rd. #B (downstairs and around back)
West Jordan, UT. 84088
Time: 1:00 pm
RSVP: Join the Facebook event page here to RSVP.

Support groups provide education and information as well as emotional support. Come and learn about epilepsy, share your feelings, or just listen. Family members and friends are also welcome to attend.

If you cannot attend at this particular time, please contact us and we will let you know when other support groups may be happening in your area.

Questions??? You can contact our Support Group Director, or the Salt Lake Valley Support Group facilitator specifically at the following email addresses.

April@epilepsyut.org
Holly@epilepsyut.org

Hope to see you there!!!

Chili's outside? Chili's inside!

It may not be that chilly for a Utah December but that's no reason not to eat hearty! Join the EAU at any Utah Chili's location December 6th, 2012 from open to close and Chili's will donate 20% of your total purchase!

As if their Spinach & Artichoke appetizer wasn't enough incentive to come in and enjoy a meal.

Be sure to print out the flyer and take it in to ANY Chili's sometime during operating hours on December 6th.

Visit the FB event page Here. See you there!

Purplelicious Pageant Date Set!

Hooray for purpleness! The Purplecious Pageant date has been set!

What: Purplelicious Pageant
When: October 20, 2012
Where: Best Western Cotton Tree Inn
Sandy, UT
Time: 9:00am - Registration
10:00am - Pageant

The Purplelicious Pageant is the brain child of Patty Gannon and her Granddaughter, Courtnie Bartholomeusz. Patty and Courtney are working to get the word out that Epilepsy is nothing to be feared, it is something you have, not something that has you. Be prepared, not only should you be lovely, you have to be lovely IN PURPLE. That's right, it's Purplelicious!

The EAU salutes Patty and Courtney and thanks them for raising awareness, one glittery fabulocity at a time!

Visit Purplelicious Pageant Application to download your application today!

Annual Halloween Carnival Announced

FOR IMMEDIATE RELEASE

EAU Confirms 2nd Annual Halloween Carnival: Whispers in the Park

SALT LAKE CITY, Utah, September 18, 2012 – In its efforts to help increase local Epilepsy awareness, the Epilepsy Association of Utah (EAU) has confirmed they will hold their 2nd Annual Halloween Carnival: Whispers in the Park on October 13th at Weber State University.

“The EAU is pleased to hold numerous events throughout the year, all of which are created to encourage those living with Epilepsy to get out and experience various activities without that fear that a seizure will occur. At EAU events, we expect a seizure. And we plan for it so we take steps to help avoid known triggers,” says Annette Maughan, President of the Epilepsy Association of Utah. She further explains the reasoning behind the significance of a Halloween Carnival by stating, “Halloween is that time when we leave behind who we are and become those things we have always wanted to become -a holiday where masks conceal the person and simple costumes make heroes out of all of us. We are thinking of these masks metaphorically and we are encouraging people living with Epilepsy to show themselves for who they are, to take off their veil and show the world that they do not need a costume to be a hero.” The EAU’s goal is to emphasize to those affected by Epilepsy and to the public that seizures can be scary; yet, when someone learns how to manage a seizure, the fear is eliminated.

The fundraising carnival will include live music & entertainment, food, games, a costume parade, a cake contest, vendors and various activities for all ages. Those interested will be admitted into the carnival grounds free of admission. More information regarding this specific event along with other information regarding the Epilepsy Association of Utah on their website at: www.epilepsyut.org

Date: Saturday October 13th, 2012
Time: 11:00am- 5:00pm
Place: Weber State University – Lower Quad
3850 University Circle
Ogden, UT 84401

ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org

Dine at IHOP...help the EAU!

You know, some days, eating is just eating. Then there are the meals spent at IHOP. On those special days devouring at IHOP, why not help The Epilepsy Association of Utah (EAU)?

From 5:00 pm to 9:00 pm on September 26th, particpating IHOPs along the Wasatch Front will donate 20% of their qualifiying sales to help the 100,000 people in Utah living with Epilepsy.

Just bring in a copy of the flyer (Download it here)

to one of the following IHOP Restaurants and the EAU will get 20% of the total cost of your meal! Now that's a meal with a purpose.

This September 26th from 5:00pm - 9:00pm IHOP will donate 20% of their sales to The Epilepsy Association of Utah. All you have to do is print out the flyer to the right, take it in to one of the Participating Restaurants, present it to your server when you order your meal with a beverage and IHOP will send us a check for 20% or your total bill. How cool is that? Help us, while enjoying a meal with family and friends!

When:
September 26th, 2012
5:00pm to 9:00pm

Where:

IHOP Ogden
189 12th Street
(801) 621-7000

IHOP Layton
920 North Main Street
(801) 593-0433

IHOP Riverdale
947 West Riverdale Road
(801) 392-4467

IHOP Centerville
388 North Market Place Drive
(801) 296-8000

IHOP Sandy
10815 South State Street
(801) 523-8613

Purpleicious Pageant Date Change

We have been contacted by the Purpleicious Pageant Coordinator and been notified that the Pageant date has been changed. The Pageant will NOT be held this Saturday but sometime in October. Details to follow.

We apologize for any inconvenience this may cause. Thank you for your understanding.

World Record Attempt Announcement!

FOR IMMEDIATE RELEASE

OFFICIAL WORLD RECORD AWARENESS RIBBON ATTEMPT ANNOUNCED

Salt Lake City, UT July 28, 2012 – The Epilepsy Association of Utah (EAU) officially announces their acceptance by The Guinness Book of World Records to attempt to create the World’s Largest Awareness Ribbon.

The current record, as of Friday July 13th 2012 was achieved by Ummeed NGO (India), at Butchery ground, Cantt, Lucknow, India, on 6 May 2012 and measures 1005.7 m (3299 ft. 3.48 in).

Under the brand: Purple Ribbons for Epilepsy, the Association will attempt to break this record by completing a unified length of 1125 m (3375 ft) in a location yet to be announced.

“This attempt is a major undertaking for the Association” explains Annette Maughan, President of the Epilepsy Association of Utah. “For the last 39 years, the EAU has been working to bring awareness to the condition of Epilepsy and it’s prevalence in society. Once this ribbon is complete, it will signify the great efforts made by all the people who have worked with the EAU in the past 40 years and the millions of people globally who live with the condition. It says: We are here, we live with Epilepsy and we are a part of society too! It’s a great way to celebrate our upcoming 40th Anniversary.”

In an effort to break the record, the EAU will need 1125 yards of 45inch fabric, a place large enough to lay it out and monetary contributions of at least $10,000 dollars.

“We are looking to hire the official Guinness adjudicator to oversee our attempt.” Annette continued, “The Association will provide most of the manual labor, however, hiring the adjudicator is pricey. But we feel it is necessary. It’s not something we want to get so close to achieving and then disappoint because our math was flawed.”

The Association is in talks to have all of the fabric donated to accommodate the Guinness requirement:

“The finished ribbon must look like a single item, with separate sections sewed together to a high standard. If several sections are sewed together the ribbon should be the same colour/pattern throughout its length so that it looks like one continuous item.”

We are asking everyone who contributes at least one yard of fabric, and who are financially able, to also send a monetary donation to assist in this effort.

More information to follow as it becomes available.

ABOUT THE EPILEPSY ASSOCIATION OF UTAH

Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.

Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org

Purplelicious Pageant Date Change

With this Saturday coming up quickly, and our excitement for the Purplelicioua Pageant building, we are somewhat saddened to hear that the pageant must be postponed for a time.

Due to an unforeseen incident, it has become necessary to change the date of the Purplelicious Pageant from August 11, 2012 to September 15, 2012.

That gives the girls a few more weeks to brush up on their interview skills, finish hemming their gowns and practice their poses. So, keep your smiles polished...the show does go on!

The EAU wishes Patty and Courtney a big thanks and see you soon!

Visit Purplelicious Pageant Application to download your application today!

Please note: The application prices have also changed.

Pretty in....Purple!

It's one thing to wear purple, it's quite another to be Purplelicious! Do you have what it takes to strut your stuff and show the world your fashionista? Maybe the Purplelicious Pageant is for you! Application deadline has been removed.

What:   Purplelicious Pageant
When:   September 15, 2012
Where: Best Western Cotton Tree Inn
            Sandy, UT
Time:   9:00am - Registration
           10:00am - Pageant

The Purplelicious Pageant is the brain child of Patty Gannon and her Granddaughter, Courtnie Bartholomeusz. Patty and Courtney are working to get the word out that Epilepsy is nothing to be feared, it is something you have, not something that has you. Be prepared, not only should you be lovely, you have to be lovely IN PURPLE. That's right, it's Purplelicious!

The EAU salutes Patty and Courtney and thanks them for raising awareness, one glittery fabulocity at a time!

Visit Purplelicious Pageant Application to download your application today!

Dr. Charlotte Dravet to Visit Salt Lake City

FOR IMMEDIATE RELEASE



DR. DRAVET TO VISIT SALT LAKE CITY: REACHING OUT TO THOSE AFFECTED BY EPILEPSY

Salt Lake City, UT June 21, 2012 – At the invitation of the Epilepsy Association of Utah, world renowned French Epileptologist, Dr. Charlotte Dravet, will visit Salt Lake City on August 15-18, 2012. Dr. Dravet has agreed to meet patients affected by Dravet Syndrome, a rare form of Epilepsy named after her research efforts. Patients are invited to meet one on one with the doctor on Monday, August 13. Dr. Dravet will also be presenting an “Introduction to Dravet Syndrome” on August 14 from 9 – 11am for all medical professionals wanting to attend. Please RSVP to this event by visiting www.epilepsyut.org/dravet_registration.html.

“The opportunity presented to the people and medical community within Utah is unparalleled”, said Kris Hansen, President of The Epilepsy Association, “Never before has the Epilepsy Community in Utah had the occasion to meet someone of her caliber. We are honored that she agreed to spend so much time here. It’s a once in a lifetime chance”.


Schedule of Meetings/Events

Monday, August 13:
9:00am – 4:00pm     Patient Visits at University of Utah


Tuesday, August 14:

12:00pm                  Lunch – By Invitation Only
2:00pm                    University of Utah Research Lab Tour
7:00pm                    Dinner with Dr. Dravet - A minimum donation of $75.00 a plate is suggested

Wednesday, August 15:
10:00am                   Lecture at University of Utah - MD only

If you would like to participate in any of these events or have any questions, please contact:

Jenn Whiting
jenn@epilepsyut.org
or
Kris Hansen
kris@epilepsyut.org

(801) 566-5949



ABOUT DR. DRAVET


Dr. Charlotte Dravet was mentored by Dr. Henri Gastaut (Lennox-Gestaut Syndrome) at the Centre St. Paul in Marseilles. Her interests were focused towards the explanationof syndromes in childhood Epilepsy, the psychological consequences of Epilepsy, the progressive Myoclonus Epilepsies and their genetics, the congenital malformations of the offspring of Epileptic women and related studies. Her main contribution was in Myoclonia Epilepsy; with emphasis on benign and severe Myoclonic Epilepsies in infancy. Dravet Syndrome, is now recognized as one of the most malignant syndromes at this age and is widely studied by other authors and clinicians as well as geneticists.

According to Davet.org, “Dr. Charlotte Dravet first described Dravet syndrome in 1978 as Severe Myoclonic Epilepsy of Infancy (SMEI). The first seizures usually happen before one year of age, with no known cause other than fever or illness. Seizures progress to be frequent and do not respond well to treatment. They also tend to be prolonged, lasting more than 5 minutes. Other types of seizures, which are common in Dravet Syndrome, appear in early childhood, including myoclonic seizures, atypical absence, complex partial seizures and nocturnal seizures. Estimates of the prevalence of this rare disorder range from 1:20,000 to 1:40,000 births.”

Dr. Charlotte Dravet has been President of the French League Against Epilepsy and a member of the Commission on Classification of Epilepsies of the ILAE. She has participated in numerous congresses, lectures and is the author of a number of published works. Now retired, she continues to work in France and Italy to improve the care of people with Epilepsy.

ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.


Press Contact:     Lindsey Palmer
Email:                lindsey@epilepsyut.org
Website:             www.epilepsyut.org
                          www.dravet.org

Register for Camp Neuro Revolution

WHAT:

Camp Neuro Revolution (previously known as Camp Spike and Wave) is a camp for youth with Epilepsy (seizure disorders).

WHEN: 

 Camp will be held from Wednesday, July 18th to Saturday, July 21st.

WHERE:

Camp is located in Park City, Utah, at the National Ability Center.

APPLY NOW!

Please fill out the form below to the best of your ability to ensure a spot at Camp for your child - a time stamp* is included upon your submission and beds are limited!

Your submission will be outputted to a spreadsheet that is directly associated with this Google Form.

Please note that the EAU will not distribute or sell any of your information that you submit.

MAIL-IN OPTION & OTHER CONCERNS:

If you would prefer to mail in the basic application (similar to the questions below) have any questions or concerns please contact Holly E. Ferrin

• via text/voice: (801) 931-9629
• via email: holly@epilepsyut.org

*NOTE: This year's registration is on a first-come-first-serve basis so save your child's spot and apply now!  Additionally, please note that there will be other paperwork you will need to fill out prior to the first day of Camp, which includes release forms, medical forms, as well as information forms for the National Ability Center. 

Additional Note:
SPONSORS, VOLUNTEER STAFF, NURSES, AND INTERPRETERS ARE NEEDED!
Please email Holly for more information on how you can help Camp Neruo Revolution be a success.

• holly@epilepsyut.org

Camp Neuro Revolution 2012 - Preview: The Cargo Net

Get ready for a Camp for youth with Epilepsy that has been Revolutionized!

The Epilepsy Association of Utah (EAU) presents a preview of one of the high ropes course elements you can expect to participate on when you come to Camp Neuro Revolution (formerly known as Camp Spike and Wave).

Camp Neuro Revolution is a 4 day, 3 night summer camp for the youth of Utah ages 10-18 who have Epilepsy or seizure disorders. It is located in spacious and glorious Park City, Utah, at the National Ability Center. 

Register Today!

To get more details about Camp, such as cost, paperwork, as well as other concerns, please contact our Camp Director, Holly E. Ferrin

• Phone: (801) 931-9629
• Email: holly@epilepsyut.org

Click here to see videos, pictures, and blog posts about our previous year of camp.

Find the EAU on Twitter @EpilepsyUTAH

Find the EAU on Facebook @Epilepsy Utah, as well as @Epilepsy Association of UT

The Epilepsy Association of Utah's Website: www.epilepsyut.org

Crop Because You Care 2012: Preview

The Epilepsy Association of Utah (EAU) presents a preview of the 11th annual Crop Because You Care fundraiser.



Do you like to scrap-book? Do you, or does someone you know, have epilepsy? Do you like gettin' crafty for a cause? Well then, the 11th annual Crop Because You Care is the place to be for you. 


"Crop the day away with your friends and family, get great ideas from the other scrappers, and learn from some of the best. A great excuse to get out and be creative! Entry price is $25.00 for the all day pass... Enjoy up to 12 hours of demonstrations, vendor booths, speakers, and creative fun. Bring your supplies and pictures along with any ideas you'd like to share"

Here are some comments that were made on the Crop Because You Care Facebook page in reference to CBYC 2010:

Nadine Jones Anderson said, "My sister and I have come for the last 8 years (I wish we new about it one year sooner!) and my daughter has benefited by attending camp twice! Thanks so much!"

Alina Dannette Burk said, "I get so excited every time CYBC comes around! I have attended every year since it began 9 years ago. I simply cannot imagine missing this event!"

Cindee Stoker Nielsen said, "My sister, mom and I have been coming to CBYC every year since it started. This year Mom has to drive four hours to get here, but we'll still be there - thanks for providing us the opportunity to get together and enjoy our favorite hobby."

The above comments are just a few of the great things heard about CBYC, if you can't believe it, come and see for yourself, this year on April 28th, 2012 at the South Towne Expo Center!

If scrap-booking isn't your thing, you can still get involved with this great cause. "The crop... has raised thousands of dollars to help the Association provide services to people dealing with the many challenges of epilepsy." If you would like to donate items to be raffled, auctioned, or if you would like to be a sponsor of this year's Crop Because You Care you can contact the EAU's office, at (801) 566-5949 or Bethany at bethany@epilepsyut.org.

For more information regarding sponsorship and donations (as well as a lot of other information) you can visit the Crop facebook page and/or the web-page within the epilepsyut.org website.


http://www.epilepsyut.org/events.html



Find the EAU on Twitter @EpilepsyUTAH

Find the EAU on Facebook @Epilepsy Utah, as well as @Epilepsy Association of UT

The Epilepsy Association of Utah's Website: www.epilepsyut.org

Purple Day Utah 2012: Reviewed

Family, Friends, Epilepsy Warriors

 Purple Day Utah was, in a word, amazing.  We must first thank everyone who helped set things up, participate and attend, as well take down.  The Epilepsy Association of Utah would not be the way it is today without YOU! 

The Salt Lake Tribune features Brittany M. and others sending off balloons for Epilepsy Awareness in Utah

Did you know that a photo of the Launch made it to the front page of the Utah section of the Tribune?  So exciting!  Thanks goes out to our new board members, Angela and Greg Green for sharing it with them.  We are also grateful that the weather was fairly cooperative.  It might have been a bit disastrous to launch those balloons in blistery, windy, wet weather!

Lift Off!

It was a special moment when we witnessed those balloons raise up into the sky.  It was seemingly symbolic - the way that we let go of them and watched them go higher and higher into the atmosphere - almost as if we let go of any problems that may have been weighing us down at that time.  It was a time to reflect and remember, a time to renew how we will continue to wear purple proudly.  By so doing, we can promote awareness, and education of what Epilepsy is and how to cope with it.

Caroline's Spine Performs!

Soon afterward, the event of the evening began to unfold.  Jeremy Anderson started off the night with his comedic talents, which then wittingly led to Caroline's Spine performance.  They are an awesome group to listen to, as well as observe.  They put passion behind what they play and the audience could feel it.  During the second half of their performance, lead singer, Jimmy Newquist invited the kids up on stage.  They loved it.  We saw them jamming out to Spine's music, following the beat of the drums and fast guitar strums.  While hearing their top song, "Sullivan," live gave us all chills, another moment to remember was when the band had everyone sing "Over the Rainbow."  It turns out that Newquist and Caroline's Spine will be returning soon to Utah.

Jimmy Newquist plays "Over the Rainbow" while the kids and audience sings along.

We are so very excited at the prospect of seeing them, hearing their music, and feeling their energy.  Thanks so much for coming to help with purple day, Caroline's Spine!        

Purple Day Utah: Faces of Utah Epilepsy

As International Epilepsy Awareness day rapidly approaches, the Epilepsy Association of Utah has compiled a video representing the many individuals in Utah living with Epilepsy. These faces are young, and not so young, brothers, sisters, husbands, and wives, they are the people we pass on the street everyday. They are as varied as the sands on a beach, and as lovely as the spring flowers now peeking from the thawing ground throughout Utah. Epilepsy awareness grows from a small seed, help us cultivate it and spread the word: You are not alone!



Thanks to our President, Kris Hansen for her hard work on this video.

Purple Day Balloon Launch 2012

FOR IMMEDIATE RELEASE

PURPLE DAY BALLOON LAUNCH SCHEDULED

SALT LAKE CITY, Utah, March 13, 2012 – In its efforts to help increase global and local Epilepsy awareness, the Epilepsy Association of Utah (EAU) will celebrate National Purple Day, held annually on March 26th, by holding a Purple Balloon Launch in Murray City. Each of the hundreds of balloon will be filled & tied with thoughts, hopes and memories of everyone, including the 50 million affected worldwide and as many as 150,000 from Utah; and then, released as a symbol of freedom and independence while each purple balloon finds its way into the world.

Date:     Monday March 26th
Time:     6:00pm
Place:    Murray City Hall Building
    5025 South State Street
    Murray, UT

Those interested in attending should meet at Murray City Hall at 6:00pm to prepare for the balloon launch. Admission is free and all ages are encouraged to participate. More information regarding this and other scheduled Purple Day events can be found on the Epilepsy Association of Utah’s website: www.epilepsyut.org

About Purple Day
National Purple Day was created by the idea of a 9-year-old girl, Cassidy Megan, motivated by her own struggles with Epilepsy. Cassidy's goal was and continues to be encouraging people to talk about Epilepsy while dismissing the myths and assuring those with seizures - they are not alone. Now every year on March 26th, people all around the world are invited to wear purple and involve themselves in events in promotional events supporting Epilepsy awareness.

About the Epilepsy Association of Utah
The Epilepsy Association of Utah provides awareness, education, support services and advocacy for and in behalf of all those dealing with the many challenges of Epilepsy/seizure disorders. More information can be found on their website @ www.epilepsyut.org

A Purple Jolt for Utah's Purple Day!

The Epilepsy Association of Utah proudly presents "Purple Jolt 2012 Benefit Rock Concert."  The performance follows the Purple Day Balloon Launch at 6:00 pm, held at Murray City Building.  The group who will be performing is Caroline's Spine, with special guest Jeremy Anderson.


About Caroline's Spine:

• Spine is an alternative American Rock band who has toured the United States and Europe with popular performing artists such as Aerosmith, Nickleback, as well as Kiss.  
• Spine is a RIAA-certified Gold and has achieve four "Top 40" rock radio hits.  
• Spine's music has been used by well-known TV networks such as ESPN, MTV, and Disney.  
• Spine is, as noted by Yamaha Music, "...one of the top 5 unsigned bands in America."

The Top Five Caroline's Spine Songs (via iTunes):

1. Sullivan
2. Attention Please
3. You and Me 
4. Nothing to Prove
5. The Light Inside

Sullivan and You and Me both come from Spine's 1997 album entitled "Monsoon."  Sullivan is reportedly the band's most popular song, due to it's accessible melody and compelling subject matter related to WWII.  You and Me starts out with a slower softer beat than Sullivan, but then turns to quicker tempo and heavier rock, it's a great song to jam out to and it seems to resonate with the frustrations rough relationships can sometimes bring.

Two years later, Spine released "Attention Please," where the tracks Attention Please and Nothing to Prove are heard.  Both tracks received high ratings on the Mainstream Rock Tracks chart at #30 and #23, respectively.  Nothing to Prove is probably a personal favorite of mine and all that I can say about it is take a listen to it below.  Attention Please, on the other hand, has a deep grungy sound whom's chorus seems to question life's train and where, as passengers, we are going.  That idea seems to ring true for a lot of people who deal with various problems, including seizures and Epilepsy.  Sometimes we wonder why it is that we have certain issues to deal with and it is, indeed, a fair question.  Until we find out why and where we are going, we can do our best to hold on for the ride.     

The last, but definitely not the least, of the top five tracks is The Light Inside from "Work It Out." It wouldn't surface until nearly a decade after Spine's aforementioned album, "Attention Please."  Nevertheless, the track definitely earned it's place among the top tracks of Spine's music.  The music is heavy with awesome beats with deep enlightening lyrics that question, and at the same time seem to encourage, the listener's ability to go on and continue to do their best despite difficulties they might experience.

Can't wait to see the band in action?  Well, the countdown is on and the concert is just days away, but until then, feel free to check out this video, from YouTube, of the group singing a song I particularly favor, Nothing to Prove.

  

Critical Info!

What: Purple Jolt 2012 Benefit Rock Concert

Where: Murray Historic Theatre 

 4961 S. State St., Murray, UT. 84107

When: Monday, March 26, 2012

Time: 7:00 pm

Tickets:

Prepaid Individual: $10

At-The-Door Individual: $12

VIP Table (includes backstage pass to meet the band, food, and private seating) $100
Buy Your Tickets Now!  

Contact: info@epilepsyut.org

Hope to see you soon for Utah Purple Day, and the Purple Jolt Rock Concert!  

Sources and Links:

Jimmy Newquist

carolinesspineofficial.com

Jeremy Anderson 

iTunes

Wikipedia 

*Caroline's Spine

*Monsoon

*Sullivan

*Attention Please

*Work It Out

Twitter 

Facebook Album Page

Facebook Musician Page

YouTube

    

Winter Rewind

It has been an exciting few months since our last post, all of the events we have held have been successful thus far.  So, lets rewind.

Fall, 2011

UEA was definitely a success, we were able to speak with many educators about Epilepsy Awareness and we invited them to join our interest lists as well as sign up for a free Seizure Smart Presentation.  As teachers and students continue to receive instruction from the presentations, they will have gained a knowledge of how to deal with seizures in the classroom.  That comes with the ability to discourage oppressive and stigmatizing actions as well as comments made by classmates, which allows students to become "Seizure Smart" as well!  Another thing that teachers are equipped with when they learn more about Epilepsy and seizures is the ability to give rescue medication, as directed, for long-lasting seizures.  Lastly, as all people gain from the presentations, they will have gained an awareness for Epilepsy and seizures, connections to activities, events and conferences the Epilepsy Association of Utah hosts, such as Whispers in the Park. 

Bounty-Hunters and little Luke Skywalker!

Whispers in the Park was our first Halloween carnival this year.  It was simply amazing how much fun everyone had.  Costumes were worn, games were played, costume contests were strutted through, prizes were won, vendors offered their items for sale, and the food was scrumptious.  A pair of Star Wars bounty-hunters even made an appearance.  A good time was had by all!  What was so awesome was that it was a festival where people with Epilepsy and seizures could come and be in a safe place to enjoy each others company.  Free from any sorts of stigma or oppression, people are were very understanding.  Through those gentle whispers, the Epilepsy Association of Utah took the superstition and mysticism out of living with Epilepsy and put those thing where they belonged: Halloween.

Kimmie at Artilepsy

 November brought a busy month for the EAU, the month of awareness began with our second annual Artilepsy art gallary.  Artilepsy is a art gallary dedicated to all types of artists who are affected by Epilepsy or have loved ones who are affected by Epilepsy.  We had a fair few people enter their artwork for Artilepsy.  We had photography, paintings, drawings, quilts, and even faberge eggs!  One of the artists, Kimmie (age 13), submitted a beautiful photo of the "Up" house and won first place in the teen photography category.  Well done!

Jenn, Jeremy, & Kris after Jeremy's comedic performance

The next day, our second annual Gala was held, this time it was at Noah's event center.  Several persons very close to persons affected by Epilepsy or affected by Epilepsy themselves spoke at the Gala, including, Dr. Afrah (a U of U Epileptologist), Glenn Fenster (Destinymaker), Mayor JoAnn B. Seghini of Midvale, the parents of Lynsay Lynch (of Laps for Lynsay), Jeremy Anderson (see right) and his comedic performance, Ryan Barnes, and two collegiate scholarship recipients as well as many others who were recognized for their service and support of the Epilepsy Association of Utah.  It was a great night to review what the EAU has been doing and it was encouraging to see how the potential for the Association is growing, as are our programs.  Thanks to the funding raised from the Gala as well as a few grants that have been awarded, the EAU is looking to start a Transportation Assistance program and Prescription Medication Assistance program.  There is even more that is being developed now, but you will just have to keep an eye out for more news!

And the morning after Gala was held, we headed up to the Univerisy of Utah's Neuroscience building for our Seizure Smart Education Conference.  Speakers included Glenn Fenster, Dr. Afrah, an AEEG specialist, Holly E. Ferrin, as well as a specialist of natural oils and their benefits with seizures and Epilepsy.  




We've got a spring that is buzzing with activities and events, including Purple Day, Caroline's Spine Concert, Crop Because You Care, and our NEW Camp Neuro Reveolution!  Be on the lookout for our next update (coming soon!).  I am sure that it will be easy to "Spring Forward" in 2012 with the Epilepsy Association of Utah!

 
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Thanks everyone, for your continued support!