FOR IMMEDIATE RELEASE
EAU Confirms 2nd Annual Halloween Carnival: Whispers in the Park
SALT LAKE CITY, Utah, September 18, 2012 – In its efforts to help increase local Epilepsy awareness, the Epilepsy Association of Utah (EAU) has confirmed they will hold their 2nd Annual Halloween Carnival: Whispers in the Park on October 13th at Weber State University.
“The EAU is pleased to hold numerous events throughout the year, all of which are created to encourage those living with Epilepsy to get out and experience various activities without that fear that a seizure will occur. At EAU events, we expect a seizure. And we plan for it so we take steps to help avoid known triggers,” says Annette Maughan, President of the Epilepsy Association of Utah. She further explains the reasoning behind the significance of a Halloween Carnival by stating, “Halloween is that time when we leave behind who we are and become those things we have always wanted to become -a holiday where masks conceal the person and simple costumes make heroes out of all of us. We are thinking of these masks metaphorically and we are encouraging people living with Epilepsy to show themselves for who they are, to take off their veil and show the world that they do not need a costume to be a hero.” The EAU’s goal is to emphasize to those affected by Epilepsy and to the public that seizures can be scary; yet, when someone learns how to manage a seizure, the fear is eliminated.
The fundraising carnival will include live music & entertainment, food, games, a costume parade, a cake contest, vendors and various activities for all ages. Those interested will be admitted into the carnival grounds free of admission. More information regarding this specific event along with other information regarding the Epilepsy Association of Utah on their website at: www.epilepsyut.org
Date: Saturday October 13th, 2012
Time: 11:00am- 5:00pm
Place: Weber State University – Lower Quad
3850 University Circle
Ogden, UT 84401
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org
Thursday, September 20, 2012
Wednesday, September 19, 2012
Dine at IHOP...help the EAU!
You know, some days, eating is just eating. Then there are the meals spent at IHOP. On those special days devouring at IHOP, why not help The Epilepsy Association of Utah (EAU)?
From 5:00 pm to 9:00 pm on September 26th, particpating IHOPs along the Wasatch Front will donate 20% of their qualifiying sales to help the 100,000 people in Utah living with Epilepsy.
Just bring in a copy of the flyer (Download it here)
to one of the following IHOP Restaurants and the EAU will get 20% of the total cost of your meal! Now that's a meal with a purpose.
This September 26th from 5:00pm - 9:00pm IHOP will donate 20% of their sales to The Epilepsy Association of Utah. All you have to do is print out the flyer to the right, take it in to one of the Participating Restaurants, present it to your server when you order your meal with a beverage and IHOP will send us a check for 20% or your total bill. How cool is that? Help us, while enjoying a meal with family and friends!
When:
September 26th, 2012
5:00pm to 9:00pm
Where:
IHOP Ogden
189 12th Street
(801) 621-7000
IHOP Layton
920 North Main Street
(801) 593-0433
IHOP Riverdale
947 West Riverdale Road
(801) 392-4467
IHOP Centerville
388 North Market Place Drive
(801) 296-8000
IHOP Sandy
10815 South State Street
(801) 523-8613
From 5:00 pm to 9:00 pm on September 26th, particpating IHOPs along the Wasatch Front will donate 20% of their qualifiying sales to help the 100,000 people in Utah living with Epilepsy.
Just bring in a copy of the flyer (Download it here)
This September 26th from 5:00pm - 9:00pm IHOP will donate 20% of their sales to The Epilepsy Association of Utah. All you have to do is print out the flyer to the right, take it in to one of the Participating Restaurants, present it to your server when you order your meal with a beverage and IHOP will send us a check for 20% or your total bill. How cool is that? Help us, while enjoying a meal with family and friends!
When:
September 26th, 2012
5:00pm to 9:00pm
Where:
IHOP Ogden
189 12th Street
(801) 621-7000
IHOP Layton
920 North Main Street
(801) 593-0433
IHOP Riverdale
947 West Riverdale Road
(801) 392-4467
IHOP Centerville
388 North Market Place Drive
(801) 296-8000
IHOP Sandy
10815 South State Street
(801) 523-8613
Friday, September 14, 2012
Purpleicious Pageant Date Change
We have been contacted by the Purpleicious Pageant Coordinator and been notified that the Pageant date has been changed. The Pageant will NOT be held this Saturday but sometime in October. Details to follow.
We apologize for any inconvenience this may cause. Thank you for your understanding.
We apologize for any inconvenience this may cause. Thank you for your understanding.
Wednesday, August 8, 2012
World Record Attempt Announcement!
FOR IMMEDIATE RELEASE
OFFICIAL WORLD RECORD AWARENESS RIBBON ATTEMPT ANNOUNCED
Salt Lake City, UT July 28, 2012 – The Epilepsy Association of Utah (EAU) officially announces their acceptance by The Guinness Book of World Records to attempt to create the World’s Largest Awareness Ribbon.
The current record, as of Friday July 13th 2012 was achieved by Ummeed NGO (India), at Butchery ground, Cantt, Lucknow, India, on 6 May 2012 and measures 1005.7 m (3299 ft. 3.48 in).
Under the brand: Purple Ribbons for Epilepsy, the Association will attempt to break this record by completing a unified length of 1125 m (3375 ft) in a location yet to be announced.
“This attempt is a major undertaking for the Association” explains Annette Maughan, President of the Epilepsy Association of Utah. “For the last 39 years, the EAU has been working to bring awareness to the condition of Epilepsy and it’s prevalence in society. Once this ribbon is complete, it will signify the great efforts made by all the people who have worked with the EAU in the past 40 years and the millions of people globally who live with the condition. It says: We are here, we live with Epilepsy and we are a part of society too! It’s a great way to celebrate our upcoming 40th Anniversary.”
In an effort to break the record, the EAU will need 1125 yards of 45inch fabric, a place large enough to lay it out and monetary contributions of at least $10,000 dollars.
“We are looking to hire the official Guinness adjudicator to oversee our attempt.” Annette continued, “The Association will provide most of the manual labor, however, hiring the adjudicator is pricey. But we feel it is necessary. It’s not something we want to get so close to achieving and then disappoint because our math was flawed.”
The Association is in talks to have all of the fabric donated to accommodate the Guinness requirement:
“The finished ribbon must look like a single item, with separate sections sewed together to a high standard. If several sections are sewed together the ribbon should be the same colour/pattern throughout its length so that it looks like one continuous item.”
We are asking everyone who contributes at least one yard of fabric, and who are financially able, to also send a monetary donation to assist in this effort.
More information to follow as it becomes available.
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org
OFFICIAL WORLD RECORD AWARENESS RIBBON ATTEMPT ANNOUNCED
Salt Lake City, UT July 28, 2012 – The Epilepsy Association of Utah (EAU) officially announces their acceptance by The Guinness Book of World Records to attempt to create the World’s Largest Awareness Ribbon.
The current record, as of Friday July 13th 2012 was achieved by Ummeed NGO (India), at Butchery ground, Cantt, Lucknow, India, on 6 May 2012 and measures 1005.7 m (3299 ft. 3.48 in).
Under the brand: Purple Ribbons for Epilepsy, the Association will attempt to break this record by completing a unified length of 1125 m (3375 ft) in a location yet to be announced.
“This attempt is a major undertaking for the Association” explains Annette Maughan, President of the Epilepsy Association of Utah. “For the last 39 years, the EAU has been working to bring awareness to the condition of Epilepsy and it’s prevalence in society. Once this ribbon is complete, it will signify the great efforts made by all the people who have worked with the EAU in the past 40 years and the millions of people globally who live with the condition. It says: We are here, we live with Epilepsy and we are a part of society too! It’s a great way to celebrate our upcoming 40th Anniversary.”
In an effort to break the record, the EAU will need 1125 yards of 45inch fabric, a place large enough to lay it out and monetary contributions of at least $10,000 dollars.
“We are looking to hire the official Guinness adjudicator to oversee our attempt.” Annette continued, “The Association will provide most of the manual labor, however, hiring the adjudicator is pricey. But we feel it is necessary. It’s not something we want to get so close to achieving and then disappoint because our math was flawed.”
The Association is in talks to have all of the fabric donated to accommodate the Guinness requirement:
“The finished ribbon must look like a single item, with separate sections sewed together to a high standard. If several sections are sewed together the ribbon should be the same colour/pattern throughout its length so that it looks like one continuous item.”
We are asking everyone who contributes at least one yard of fabric, and who are financially able, to also send a monetary donation to assist in this effort.
More information to follow as it becomes available.
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org
Tuesday, August 7, 2012
Purplelicious Pageant Date Change
With this Saturday coming up quickly, and our excitement for the Purplelicioua Pageant building, we are somewhat saddened to hear that the pageant must be postponed for a time.
Due to an unforeseen incident, it has become necessary to change the date of the Purplelicious Pageant from August 11, 2012 to September 15, 2012.
That gives the girls a few more weeks to brush up on their interview skills, finish hemming their gowns and practice their poses. So, keep your smiles polished...the show does go on!
The EAU wishes Patty and Courtney a big thanks and see you soon!
Visit Purplelicious Pageant Application to download your application today!
Please note: The application prices have also changed.
Due to an unforeseen incident, it has become necessary to change the date of the Purplelicious Pageant from August 11, 2012 to September 15, 2012.
That gives the girls a few more weeks to brush up on their interview skills, finish hemming their gowns and practice their poses. So, keep your smiles polished...the show does go on!
The EAU wishes Patty and Courtney a big thanks and see you soon!
Visit Purplelicious Pageant Application to download your application today!
Please note: The application prices have also changed.
Friday, July 20, 2012
Pretty in....Purple!
It's one thing to wear purple, it's quite another to be Purplelicious! Do you have what it takes to strut your stuff and show the world your fashionista? Maybe the Purplelicious Pageant is for you! Application deadline has been removed.
What: Purplelicious Pageant
When: September 15, 2012
Where: Best Western Cotton Tree Inn
Sandy, UT
Time: 9:00am - Registration
10:00am - Pageant
The Purplelicious Pageant is the brain child of Patty Gannon and her Granddaughter, Courtnie Bartholomeusz. Patty and Courtney are working to get the word out that Epilepsy is nothing to be feared, it is something you have, not something that has you. Be prepared, not only should you be lovely, you have to be lovely IN PURPLE. That's right, it's Purplelicious!
The EAU salutes Patty and Courtney and thanks them for raising awareness, one glittery fabulocity at a time!
Visit Purplelicious Pageant Application to download your application today!
What: Purplelicious Pageant
When: September 15, 2012
Where: Best Western Cotton Tree Inn
Sandy, UT
Time: 9:00am - Registration
10:00am - Pageant
The Purplelicious Pageant is the brain child of Patty Gannon and her Granddaughter, Courtnie Bartholomeusz. Patty and Courtney are working to get the word out that Epilepsy is nothing to be feared, it is something you have, not something that has you. Be prepared, not only should you be lovely, you have to be lovely IN PURPLE. That's right, it's Purplelicious!
The EAU salutes Patty and Courtney and thanks them for raising awareness, one glittery fabulocity at a time!
Visit Purplelicious Pageant Application to download your application today!
Friday, June 29, 2012
Dr. Charlotte Dravet to Visit Salt Lake City
FOR IMMEDIATE RELEASE
DR. DRAVET TO VISIT SALT LAKE CITY: REACHING OUT TO THOSE AFFECTED BY EPILEPSY
Salt Lake City, UT June 21, 2012 – At the invitation of the Epilepsy Association of Utah, world renowned French Epileptologist, Dr. Charlotte Dravet, will visit Salt Lake City on August 15-18, 2012. Dr. Dravet has agreed to meet patients affected by Dravet Syndrome, a rare form of Epilepsy named after her research efforts. Patients are invited to meet one on one with the doctor on Monday, August 13. Dr. Dravet will also be presenting an “Introduction to Dravet Syndrome” on August 14 from 9 – 11am for all medical professionals wanting to attend. Please RSVP to this event by visiting www.epilepsyut.org/dravet_registration.html.
“The opportunity presented to the people and medical community within Utah is unparalleled”, said Kris Hansen, President of The Epilepsy Association, “Never before has the Epilepsy Community in Utah had the occasion to meet someone of her caliber. We are honored that she agreed to spend so much time here. It’s a once in a lifetime chance”.
Schedule of Meetings/Events
Monday, August 13:
9:00am – 4:00pm Patient Visits at University of Utah
Tuesday, August 14:
12:00pm Lunch – By Invitation Only
2:00pm University of Utah Research Lab Tour
7:00pm Dinner with Dr. Dravet - A minimum donation of $75.00 a plate is suggested
Wednesday, August 15:
10:00am Lecture at University of Utah - MD only
If you would like to participate in any of these events or have any questions, please contact:
Jenn Whiting
jenn@epilepsyut.org
or
Kris Hansen
kris@epilepsyut.org
(801) 566-5949
ABOUT DR. DRAVET
Dr. Charlotte Dravet was mentored by Dr. Henri Gastaut (Lennox-Gestaut Syndrome) at the Centre St. Paul in Marseilles. Her interests were focused towards the explanationof syndromes in childhood Epilepsy, the psychological consequences of Epilepsy, the progressive Myoclonus Epilepsies and their genetics, the congenital malformations of the offspring of Epileptic women and related studies. Her main contribution was in Myoclonia Epilepsy; with emphasis on benign and severe Myoclonic Epilepsies in infancy. Dravet Syndrome, is now recognized as one of the most malignant syndromes at this age and is widely studied by other authors and clinicians as well as geneticists.
According to Davet.org, “Dr. Charlotte Dravet first described Dravet syndrome in 1978 as Severe Myoclonic Epilepsy of Infancy (SMEI). The first seizures usually happen before one year of age, with no known cause other than fever or illness. Seizures progress to be frequent and do not respond well to treatment. They also tend to be prolonged, lasting more than 5 minutes. Other types of seizures, which are common in Dravet Syndrome, appear in early childhood, including myoclonic seizures, atypical absence, complex partial seizures and nocturnal seizures. Estimates of the prevalence of this rare disorder range from 1:20,000 to 1:40,000 births.”
Dr. Charlotte Dravet has been President of the French League Against Epilepsy and a member of the Commission on Classification of Epilepsies of the ILAE. She has participated in numerous congresses, lectures and is the author of a number of published works. Now retired, she continues to work in France and Italy to improve the care of people with Epilepsy.
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org
www.dravet.org
DR. DRAVET TO VISIT SALT LAKE CITY: REACHING OUT TO THOSE AFFECTED BY EPILEPSY
“The opportunity presented to the people and medical community within Utah is unparalleled”, said Kris Hansen, President of The Epilepsy Association, “Never before has the Epilepsy Community in Utah had the occasion to meet someone of her caliber. We are honored that she agreed to spend so much time here. It’s a once in a lifetime chance”.
Schedule of Meetings/Events
Monday, August 13:
9:00am – 4:00pm Patient Visits at University of Utah
Tuesday, August 14:
12:00pm Lunch – By Invitation Only
2:00pm University of Utah Research Lab Tour
7:00pm Dinner with Dr. Dravet - A minimum donation of $75.00 a plate is suggested
Wednesday, August 15:
10:00am Lecture at University of Utah - MD only
If you would like to participate in any of these events or have any questions, please contact:
Jenn Whiting
jenn@epilepsyut.org
or
Kris Hansen
kris@epilepsyut.org
(801) 566-5949
ABOUT DR. DRAVET
Dr. Charlotte Dravet was mentored by Dr. Henri Gastaut (Lennox-Gestaut Syndrome) at the Centre St. Paul in Marseilles. Her interests were focused towards the explanationof syndromes in childhood Epilepsy, the psychological consequences of Epilepsy, the progressive Myoclonus Epilepsies and their genetics, the congenital malformations of the offspring of Epileptic women and related studies. Her main contribution was in Myoclonia Epilepsy; with emphasis on benign and severe Myoclonic Epilepsies in infancy. Dravet Syndrome, is now recognized as one of the most malignant syndromes at this age and is widely studied by other authors and clinicians as well as geneticists.
According to Davet.org, “Dr. Charlotte Dravet first described Dravet syndrome in 1978 as Severe Myoclonic Epilepsy of Infancy (SMEI). The first seizures usually happen before one year of age, with no known cause other than fever or illness. Seizures progress to be frequent and do not respond well to treatment. They also tend to be prolonged, lasting more than 5 minutes. Other types of seizures, which are common in Dravet Syndrome, appear in early childhood, including myoclonic seizures, atypical absence, complex partial seizures and nocturnal seizures. Estimates of the prevalence of this rare disorder range from 1:20,000 to 1:40,000 births.”
Dr. Charlotte Dravet has been President of the French League Against Epilepsy and a member of the Commission on Classification of Epilepsies of the ILAE. She has participated in numerous congresses, lectures and is the author of a number of published works. Now retired, she continues to work in France and Italy to improve the care of people with Epilepsy.
ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp, and more. Visit http://www.epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org
www.dravet.org
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