Details About Crop Because You Care 2013

Come Save Memories in Scrapbooks and Have a Great Time!

The 12th Annual Crop Because You Care scrapbooking event is scheduled for Saturday, February 23rd from 10:00 A.M. to 10 P.M. The affair is being held at the Hilton Garden Inn, at 277 West Sego Lily Dr in Sandy, Utah. All proceeds directly benefit the Epilepsy Association of Utah.

Crop Because You Care has become the yearly fund raiser, according to Kris Hansen, Epilepsy Association of Utah Vice-President. People of all ages come from throughout Utah and as far away as California, Idaho, and Nevada with their scrap-booking supplies to crop the day away. There will also be a special drawing for a get-away, and a silent auction.

Be sure to check out our listing (below) of fabulous sponsors and supporters of Crop Because You Care. And, for up-to date announcements about Crop Because You Care, please follow us on Facebook and join our event. http://www.facebook.com/EAUCBYC

The Epilepsy Association of Utah is the largest non-profit 501(c)(3) statewide, voluntary health organization that provides awareness, education, support services, and advocacy for and in behalf of all those dealing with the many challenges of epilepsy/seizure disorders.
Epilepsy is a disorder with a variety of causes. It is not contagious. In Utah alone there are over 107,000 people with epilepsy. Nationally epilepsy affects more than three million Americans and over 200,000 new cases are diagnosed annually. One in 26 people will develop epilepsy and one in ten people will have a seizure at some point in their lives.

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For further information call the Epilepsy Association of Utah at 801.566.5949 or email Kris at kris@epilepsyut.org.

South Jordan Proclaims March 26th Purple Day

FOR IMMEDIATE RELEASE

South Jordan Proclaims March 26^th Purple Day

SALT LAKE CITY, Utah, February 19, 2013 –  On February 19^th, 2013, South Jordan Mayor Scott L. Osborne officially proclaimed March 26^th, 2013 and every subsequent March 26^th, Purple Day in the city.  Following the efforts of Demi Sintz, Purple Day Ambassador for South Jordan, and the office of the Mayor, the proclamation is the first to be signed in the state of Utah this year.

12 year old Sintz became an Ambassador to raise awareness for all the right reasons:

“If you asked anyone in my school what they would do if they saw someone have a seizure, I bet most of them wouldn’t have a clue.” Sintz said. “My little brother has epilepsy. I became a Purple Day Ambassador to be an advocate for my brother and to help make people more aware about epilepsy. I want people to know what to do if they see my brother, or anyone else, having a seizure. It could happen anywhere. It could save a life if you know what to do!”

She continued: “I want people to know what a seizure looks like. I want them to know it will be scary and it will be every time, but you need to be calm. Let the person know you are there for them. You need to know what to do. I have learned to be there for my brother and I know it will be ok!”

The Epilepsy Association of Utah applauds Demi and the City of South Jordan for dedicating the day to the 150,000 people of Utah, and their families, who live with the condition.

ABOUT PURPLE DAY

Purple Day for Epilepsy is held each year on March 26 and is dedicated to raising awareness about epilepsy. It helps reduce stigma and empowers individuals living with epilepsy to take action in their communities. Purple Day was founded in 2008 by nine-year-old Cassidy Megan of Nova Scotia, and named after the internationally recognized colour for epilepsy, lavender.  Purple Day was launched internationally in 2009. The Epilepsy Association of Nova Scotia and the Anita Kaufmann Foundation in the United States are the global partners for the Purple Day campaign.  UCB Canada Inc. is the exclusive Canadian biopharmaceutical partner for the 2012 Purple Day campaign. For more information, please visit www.purpleday.org. 

ABOUT THE EPILEPSY ASSOCIATION OF UTAH

Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4^th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more.  Visit http://epilepsyut.org for additional information.

Press Contact:        Lindsey Palmer

Email:                    lindsey@epilepsyut.org

Website:                 www.epilepsyut.org

EAU Announces New Support Groups

FOR IMMEDIATE RELEASE

EAU Adds New Support Groups

SALT LAKE CITY, Utah, February 12, 2013 –“No person, trying to take responsibility for her or his identity, should have to be so alone. There must be those among whom we can sit down and weep, and still be counted as warriors.” ― Adrienne Rich

The EAU is pleased to announce the creation of 5 new support groups throughout Utah.

“These new additions to our Support Group offerings will allow people to more closely align with those they consider knowledgeable about what they are going through”, said Annette Maughan, President of the Epilepsy Association of Utah. “We understand that, depending on where a person is in their epilepsy journey, they may feel more comfortable with someone their own age, or with similar interests, and to that end, we have created specific groups to help build a more positive experience in living with epilepsy”.

Meeting various times throughout the month, the new groups are specific enough to encourage more openness, education, interaction and in some cases: more fun! We hope to see you there!

Parent Support Group:
McKay-Dee Hospital
4401 Harrison Blvd. South Entrance
Education Center room 4
4th Thursday of every month at 7:30 pm
Rebecca - parentsupport@epilepsyut.org

Sibling Support Group:
EAU office
8539 S. Redwood Rd. #B
West Jordan, Utah
1st Saturday of every month at 11:00 – 12:30pm
Annette - siblingsupport@epilepsyut.org

Young Adult Support Group:
EAU office
8539 S. Redwood Rd. #B
West Jordan, Utah
2nd Thursday of every month at 7:00pm
Chris - youngadultsupport@epilepsyut.org

Syndrome Specific Support Groups:
EAU office
8539 S. Redwood Rd. #B
West Jordan, Utah
As requested
Syndi - syndromesupport@epilepsyut.org

Over 65 Support Group:
As needed, location to be determined by request.
Judy – Over65@epilepsyut.org



ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.

Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org

Salt Lake Valley Support Group

Please note, the time change and location are temporary.

The topic for the month of December is doctor visits, care, and questions to ask. 

When: Sat, Dec. 8th, 2012
Where: EAU Office
8539 S. Redwood Rd. #B (downstairs and around back)
West Jordan, UT. 84088
Time: 1:00 pm
RSVP: Join the Facebook event page here to RSVP.

Support groups provide education and information as well as emotional support. Come and learn about epilepsy, share your feelings, or just listen. Family members and friends are also welcome to attend.

If you cannot attend at this particular time, please contact us and we will let you know when other support groups may be happening in your area.

Questions??? You can contact our Support Group Director, or the Salt Lake Valley Support Group facilitator specifically at the following email addresses.

April@epilepsyut.org
Holly@epilepsyut.org

Hope to see you there!!!

Chili's outside? Chili's inside!

It may not be that chilly for a Utah December but that's no reason not to eat hearty! Join the EAU at any Utah Chili's location December 6th, 2012 from open to close and Chili's will donate 20% of your total purchase!

As if their Spinach & Artichoke appetizer wasn't enough incentive to come in and enjoy a meal.

Be sure to print out the flyer and take it in to ANY Chili's sometime during operating hours on December 6th.

Visit the FB event page Here. See you there!

Purplelicious Pageant Date Set!

Hooray for purpleness! The Purplecious Pageant date has been set!

What: Purplelicious Pageant
When: October 20, 2012
Where: Best Western Cotton Tree Inn
Sandy, UT
Time: 9:00am - Registration
10:00am - Pageant

The Purplelicious Pageant is the brain child of Patty Gannon and her Granddaughter, Courtnie Bartholomeusz. Patty and Courtney are working to get the word out that Epilepsy is nothing to be feared, it is something you have, not something that has you. Be prepared, not only should you be lovely, you have to be lovely IN PURPLE. That's right, it's Purplelicious!

The EAU salutes Patty and Courtney and thanks them for raising awareness, one glittery fabulocity at a time!

Visit Purplelicious Pageant Application to download your application today!

Annual Halloween Carnival Announced

FOR IMMEDIATE RELEASE

EAU Confirms 2nd Annual Halloween Carnival: Whispers in the Park

SALT LAKE CITY, Utah, September 18, 2012 – In its efforts to help increase local Epilepsy awareness, the Epilepsy Association of Utah (EAU) has confirmed they will hold their 2nd Annual Halloween Carnival: Whispers in the Park on October 13th at Weber State University.

“The EAU is pleased to hold numerous events throughout the year, all of which are created to encourage those living with Epilepsy to get out and experience various activities without that fear that a seizure will occur. At EAU events, we expect a seizure. And we plan for it so we take steps to help avoid known triggers,” says Annette Maughan, President of the Epilepsy Association of Utah. She further explains the reasoning behind the significance of a Halloween Carnival by stating, “Halloween is that time when we leave behind who we are and become those things we have always wanted to become -a holiday where masks conceal the person and simple costumes make heroes out of all of us. We are thinking of these masks metaphorically and we are encouraging people living with Epilepsy to show themselves for who they are, to take off their veil and show the world that they do not need a costume to be a hero.” The EAU’s goal is to emphasize to those affected by Epilepsy and to the public that seizures can be scary; yet, when someone learns how to manage a seizure, the fear is eliminated.

The fundraising carnival will include live music & entertainment, food, games, a costume parade, a cake contest, vendors and various activities for all ages. Those interested will be admitted into the carnival grounds free of admission. More information regarding this specific event along with other information regarding the Epilepsy Association of Utah on their website at: www.epilepsyut.org

Date: Saturday October 13th, 2012
Time: 11:00am- 5:00pm
Place: Weber State University – Lower Quad
3850 University Circle
Ogden, UT 84401

ABOUT THE EPILEPSY ASSOCIATION OF UTAH
Founded in 1973, The Epilepsy Association of Utah is a 501(c)(3) charity dedicated to enhancing the quality of life for all individuals living with Epilepsy and seizure disorders. 1 in 26 people will develop Epilepsy at some time in their lives leading to over 150,000 people in Utah alone. Epilepsy is the 4th most common neurological disorder in the US after migraine, stroke and Alzheimer’s. The Epilepsy Association of Utah offers a public education program, statewide support groups, personal and professional advocacy, college scholarships, art exhibits, educational conferences, summer camp and more. Visit http://epilepsyut.org for additional information.
Press Contact: Lindsey Palmer
Email: lindsey@epilepsyut.org
Website: www.epilepsyut.org